Tuesday, February 4, 2014

Well Today Just Plain Sucked

 

Well today was not a good day.  Started out bad and ended bad.  I am SO ready to crawl into bed and start over again tomorrow.  The only saving grace is that I never have two bad days in a row so tomorrow has GOT to be better!  

So the day started with Jacob waking up coughing and wheezing with a 104 fever.  Super.  Then Owen up and I could tell he was in a bad mood.  When we tried getting his coat and hat on to get him ready for school all hell broke loose.  Thankfully Jamie was still home to help and my sister Kim was here for the day too.  Kim stayed in the kitchen to snuggle sick Jacob while Jamie and I tried everything to calm Owen down and get him out the door as his ride was here.  He was hysterical, screaming at the top of his lungs, we physically could not have put his coat on if we wanted to.  So we told his ride to leave and that Jamie would take him.  So we finally got Owen calmed down and buckled into Jamie's truck.  They took off for school and Kim, Jacob and I got in my car and drove to Froedert for my radiation.  

Kim and Jacob just dropped me off at the front door and I ran inside so we didn't have to spread Jacbob's germs around and as I was waiting to be called back I got a call from Jamie.  I answered and heard a a few seconds of silence which is never a good sign and then Jamie's broken voice saying through tears that he was at school and Owen was refusing to go inside and he didn't know what to do.  I guess they made it half way up the stairs outside before Owen started freaking out again.  There was nothing he could do to get him inside.  Teachers came out to help, Jamie started crying on the steps right along with Owen, it was a mess.  My heart just broke.  It sucks that this is even happening, sucks that Owen has been under so much stress that it has really affected him, sucks that Jamie already has so much on his plate that he has to deal with this school stuff too, sucks that I Owen's mom can't be there because I am in the stupid CANCER clinic waiting for radiation instead of helping my child.  Agh, this morning just SUCKED!  I felt so bad for Owen who is just struggling to transition back to school.  Yesterday was SO good, why was today SO bad!  I feel bad for Jamie who is taking such great care of me, stressing and worrying about my health, Owen's health, dealing with Jacob's attitude when I lose patience AND working around the clock to keep up with work.  I feel bad that we have to second guess everything that Owen does.  Is he testing his limits or is he scared to go back to school because he feels off?  The last time he did something like this he ended up having a big seizure and we realized that was why he was so afraid to go to school, because he could sense it coming and didn't want to be away from us.  

So really, how the hell are we supposed to know what to do in these situations?  He HAS to go to school but what if he really doesn't feel right?  It's SO hard, I can't even begin to tell you but picturing Jamie breaking down and crying in front of the teachers and other moms in front of the school this morning should give you a little idea of just how much some of this sucks right now.  Then at bedtime, Owen usually goes to bed just fine, we read books, I rub his butt for five minutes and then I leave while he is still awake and he falls right asleep.  Well the last few nights he has been crying when I leave.  Tonight he started crying and screaming at the top of his lungs.  Jamie had just gotten home from work and I just sat down and started crying and Jamie went into Owen's room and got him to fall asleep.  I just wish I knew why Owen was acting like this.  I feel so bad that he is so off, is it the stress of this all?  Is he just testing his limits?  Is he feeling weird from all of his mediciation or does he sense there is something wrong with me and that is why he doesn't want to be away from me?  Either way, no matter what the answer is I don't like it.  I just wish for normalcy, a schedule, a routine and it just doesn't seem that it's coming anytime soon.  

Now Jacob is sick.  I have never seen him so pathetic.  He had a fever of 103 ALL day and fell asleep sitting on the couch TWICE today, he had never done that in his LIFE!  So tomorrow instead of both boys being at daycare/school all day Jacob will be home sick and HOPEFULLY Owen will go to school!  I had a doctor's appointment that was supposed to be Thursday that was now switched to tomorrow at 9:10 which means tomorrow I will be leaving sick Jacob at home with my friend Jen who will be with me for the day.  Jamie will be staying home in the morning so that him and I can take Owen to school together at 8:50 for speech therapy and pray the drop off goes well because we will then have to RACE to Froedert so I can make my 9:10 doctor appointment.  Jamie will just be dropping me off and then racing into work himself and I will be at Froedert for the doctor appointment and radiation and then my friend Christen is picking me up and driving my home.  So much to coordinate, I just want to be able to focus on Owen and getting him back to school but it will be so rushed.  Agh! 

This was just such a stupid and exhausting day.  I know tomorrow will be better, I can't imagine it being worse, yikes, that would really suck.  Just felt like today was a little much, a little too much shit piled on top of a lot of SHIT that was already on my plate.  

Today was NOT a good day for my sister to bring over the Girl Scout cookies.  Those Peanut Butter Patties didn't even know what hit them. 

Alright, I am going to bed and waking up tomorrow to a better day!  I know this!  


  A rare photo of the boys sitting close enough to touch each other without anyone shoving or pushing. This should be a collectors edition it's so rare to see this! 

and a few photos that sum up my feelings towards today!
 





 

14 comments:

  1. This story is a huge load of crap. That little old lady was the most helpful and nicest lady I have ever dealt with! Some people will do anything for attention and try to get something for free..... What us wrong with you people?!?

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    1. And who the hell are you?! How do you know what's true and what's not? Do you really think a woman fighting a brain tumor has time to conjure up a story like that? You don't have a clue what she is going through. .. By the way- I do so f*ck off!

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    2. Cory,I know what's true & you don't so you fu'k off.

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    3. Your stating that you "know what's true" sure makes it sound like you are affiliated with Sharon's, or perhaps you ARE Sharon or the big-mouthed sales woman. Unless you were there when this happened, how do you "know what's true"? If you are in fact just a customer of Sharon's, you very well may have had a pleasant experience, but is it impossible that Alison had an awful experience there? Claiming that she made this up is far from classy on your part. I think everyone has dealt with a rude sales associate at one time or another, maybe not to this horrendous extent. This happening to Alison seems much more believable than a woman battling cancer and raising two youngsters taking the time and effort to conjure this story up.

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  2. I am thinking of you and praying for you. My heart just breaks hearing your story. From someone who has been a caregiver for a brain cancer fighter, I know the journey isn't easy. I wish you all the very best, and you will have some serious prayers coming from over here!

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  3. What amazing and beautiful strength you have, Alison! Overall, but specifically for this situation. To not only endure such a horrible display of "humanity," but to share it with everyone. I would imagine you kept this from happening to someone else. Not everyone has the strength and intelligence you have. I wish you nothing but love and support for you and you family!

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  4. I'm a cancer patient too and really don't understand what makes these people so rude and insensitive. Kind of feel sorry for then to have such anger in their hearts. At any rate I wanted to tell you about my great experience at American Cancer society. It was private fitting with no on else in the salon. They let you take as long as you wanted. Made recommendations. Helped with finding right fit and putting it on. They had wigs of all lengths colors and styles to choose from and you could also get a free hat or scarf. If they didn't have the color you wanted they ordered it with no obligation for you to take it if you did not like. They also offer free wig trimming if for example you want bangs and length overall a little shorter. They instruct you how to clean and groom. I'm so happy with mine because it looks so much like my really hair.

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  5. as you enter the radiation point, please please ask if it will be directed at you or rads implanted., i think that is a very old method, but i am thinking 25 years ago when my friend was first diagnosed. they implanted rads, along with the other radiation and followed with chemo. while she has been cancer free for 20 years i believe it is, the rads in her brain broke loose and caused a stroke. she is mostly fine, after all,, when you get the wrong side of 50, life can get in the way. after the chemo was finished, her hair did start to come back, everywhere but where the radiation was aimed. she found when she was so nauseous from the chemo, that carnation instant breakfasts, chocolate of course, stayed down if mixed with very cold milk. if they still make them in the packets have them on hand, perhaps ensure, but that was not an option all those years ago. i wish you all the best. always be positive, and dont hesitate to say the word that you said at that salon. people are insensitive, and as i found out with vickie, only get more so as you continue to live your life through the treatments that face you. there is no reason to hide indoors and you know that since you are looking at wigs. think to bandanas an light caps for the summer months as well. may good grant you the blessings that he has granted vickie- that is the opportunity to watch your sons graduate from college and then some. good luck to you. i send you prayers and strength

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    1. It is so sad that customer service has basically gone out the door and RUDENESS has taken over. Bless you and what you are going through. I am a brain tumor SURVIVOR, very recently in fact... so keep your chin up and keep trucking on! You are beautiful! Things DO eventually look up. It may not seem like it, like after days like your wig shopping day, but the sun will shine bright again!

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  6. First, Alison, I just want to send you a ((((((BIG HUG)))))) from Virginia Beach!!!! Talk about a story going VIRAL....WOW!! I really pray that God reach Sharon's heart through this as well as her employee's that were so disrespectful and just downright RUDE and they right this wrong- even though words can leave deep scars!!! For everyone here, I am grateful that I serve a loving God that has forgiven me for some of the things I have done in my life!!! Please, Alison, know that as you go through this horrific battle with such a cruel disease that you are surrounded by tons of support here along with lots of love and prayers!! This journey cannot be an easy path to be on right now..but for you to know that you are not alone, allow this to surround you in comfort..
    I have seen with my own eyes that God has a very unique way of handling situations like these....keep the faith, my lady, big plans are in store for you!!! Thank you for sharing your story with us...the one of strength, courage and survival!!!

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  7. I'm so tired of getting sub par service with a nasty attitude on top, seems its unfortunately the norm these days. You can read my review of what just happened to my daughter who has a heart condition at Pink and White nails in Largo, FL. Rachel N

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  8. I'm so tired of getting sub par service with a nasty attitude on top, seems its unfortunately the norm these days. You can read my review of what just happened to my daughter who has a heart condition at Pink and White nails in Largo, FL. Rachel N

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  9. Stop people you are ruining a persons life the way they provide for their family. There is no proof in this story. No tape, no recorded conversation, no witnesses unbiased... Although it's a sad post don't ruin Sharon's business over gossip and without proof is gossip.

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  10. Time to get everyone to boicot that business!!

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